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Ostomy Community

This patient support community is for discussions relating to ostomy, colostomy, diet and nutrition, gastrostomy ileostomy, jejunostomy, ostomy reversal, sex and relationships, stoma, urostomy, and wound care.

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Avatar universal
I am to have surgery for colon/rectal cancer in a few weeks. The surgeon is to remove 12 inches of my colon/rectum and says I should have a permanent colostomy because my bowel muscles are extremely weak. She said i could leave a more ...
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Avatar universal
I just had an episode where I was cleaning - sometimes I squeeze a bit to make sure nothing voids while I'm trying to apply my device - fluid came from the ileostomy end and from the middle of my stoma where the two ends meet - what are ...
  Posted
1145654 tn?1261423811
I has emergency surgery two weeks ago and had all of my colon and bowel removed. Non reversible. Can anyone who has had this done tell me if they had any normal bowel movements after surgery. I thought it would be impossible and the nurs...
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Avatar universal
Hi ladies, has anyone with an ileostomy had a total abdominal hysterectomy please? Very anxious!!
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Avatar universal
Does anybody know what are the two buttons near the peg tube? The peg tube was inserted last january 10, 2016 and one of the buttons fell off today. What do i do? Thanks!
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Avatar universal
My son is 8 1/2, he has had an ileostomy for 2 years now and we've had issues off an on. Usually his stoma is almost flush to his skin or raised maybe 1/2 inch. Its never very large at all. Today after he came in from playing I changed ...
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Avatar universal
Will having sex with a stoma cause a hernia Are there any positions that must be avoided
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Avatar universal
I had my operation around 9 months ago and have had around 4 barium enemas to see if I had healed enough for a reversal. It has been around 3 months since my last test. Yesterday I had an actual bowl movement and since then my abdomen...
  Posted
Avatar universal
I have had an ileostomy for over 30 years. Over the past several months, I have been having a lot of pain in my lower GI. The pain feels as if I need to go to the bathroom. I have had these "phantom" feelings before, but never to the ...
  Posted
Avatar universal
My boyfriend is considering a colostomy bag for himself. He only has 1 arm that can be used and that his grip isn't very strong. We are trying to obtain some suggestions for a bag that he could use on his own. He went to discuss some opt...
  Posted
Avatar universal
Hello, I just had surgery on 9/4/15 and was discharged on 9/14/15. After two weeks of being discharged from the hospital I now have the urge to go number two. I sit in the bathroom for 5-10 mins at lease 3-4 times a day but nothing com...
  Posted
Avatar universal
Should we buy a Stoma Bag or make one at home? I have watched a video in which it is taught to make Ostomy Belt and Ostomy Bag. I'm confused a bit. Which one would you prefer and why?
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Avatar universal
I just got an ostomy bag in may. I cant get staight answers on some of my questions. How ofton should I change my bag and what is best a one piece bag or two piece. Right now I use a hollister 8031 one piece. Also I use one of those stic...
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Avatar universal
Hi , I am on the list for colostomy surgery due to what the doctors are saying is obstructed defecation. I empty my bowel in small amounts over several hours every morning despite using laxatives as prescribed. The don't really know why ...
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Avatar universal
Looking for people willing to tell their stories about how/when/why they have their permanent ostomys. Please leave a comment if interested. Thanks! :) Many Blessings~ Tina
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Avatar universal
My mom had surgery last August and since she had the surgery she has had issues off and on with the he bag staying on properly and leaking. It gets bad to the point that that her skin gets burned and blisters which makes the bag hard to ...
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Avatar universal
I am a twin sister to my 18 year old brother Ben. Recently, Ben had an ileostomy and now has a stoma on the lower left of his midsection. My family has had trouble finding solutions to make the wafer and bag stick to his stomach, as he h...
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Avatar universal
My mom has a colostomy and she's having a lot of trouble with soft bowels. When they are like that, it pushes up the barrier edges. Any help would be greatly appreciated on firming up her bowels or getting the barrier to stay stuck.
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Avatar universal
Hi, I've been told by my surgeon that I need to have my large colon and rectum removed because the rectum is not able to be reconnected. Has anyone did a second opinion and or did the new trials for research, and had success in healing o...
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Avatar universal
I have white not crystalline deposits on the edge of my iliostomy stoma. Very tender. vinegar and water does nothing. I have enlarged the size of the barrier home to not rub the deposit but that is not working well
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