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Ostomy Community

This patient support community is for discussions relating to ostomy, colostomy, diet and nutrition, gastrostomy ileostomy, jejunostomy, ostomy reversal, sex and relationships, stoma, urostomy, and wound care.
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1 - 20 (of 353) questions
Avatar universal

I had an ostomy since 2009. I now have a pyloric ulcer

BearDNA
The pyloric ulcer is hurting , making me burp and stomach churn constantly. Had endoscopy. Huge and acute Doc gave me all kinds of Rx ...
Avatar universal

BM collects on wafer

mcgraw48
My husband has had his pouch for 5 mos and it is doing ok except BM collects at the top inside of the wafer and makes the filter clog up...
6 answers | 1 comment   
Avatar universal

Is it normal to have a bowel movement 9 months after a stoma?

zariel09
I had my operation around 9 months ago and have had around 4 barium enemas to see if I had healed enough for a reversal. It has been arou...
18 answers | 4 comments   
Avatar universal

Why is my Hollister bag collapsing and vacuuming?

Ccnic
Have tried tape over charcoal filters. Vacuum effect seems severe. Hence, pancaking
Avatar universal

how do I keep from getting frequent UTIs

cretired
I have UTI infections frequently over the years. My doctor says it is from the bacteria from my stoma. Anyone else faced with ongoing ...
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End of Marriage?

donna107222
I am an attractive middle-aged woman. I have had the ileostomy for a year. I am wondering if it is possible for a woman with an ileostom...
8 answers | 1 comment   
Avatar universal

Prolapse stoma after a colostomy

lattesara
My surgery was 11-18-16 and I prolapse after 4 weeks . I am now prolapse 24-7 anywhere from 4 to 7 inches ! I must stay laying flat on ...
1 answer   
Avatar universal

What to do about stoma fungus?

Rayan_chermand
Does anyone know anything about fungus growing on a stoma? What should I do? It is flaky and yellow
Avatar universal

How can I get the ileostomy bag to stay on?

glxyrr1
My father has had a colostomy for over 40 years and has had surgery changing him to an ileostomy. Over the past 40 years, he has used ba...
1 answer   
Avatar universal

I need a very flexible pouching system with front access to my stoma.

Brucechesterton
My stomach is level with my skin. When I use the two piece wafer and bag, the wafer is too rigid and pulls away from my skin, even with ...
2 answers   
Avatar universal

looking for REALLY. effective odour and gas solution

cikkku
Hi all, One of our major concerns is bag odour and gas/wind. I have tried liquers, branded colostomy products, simethicone and charc...
1 answer   
Avatar universal

Double Baggers Out There??? People with Multiple Stomas? Support Group New

DuchessLoula
I am writing to ask if you could publicise our new group on Facebook. We are a group of people who have for many different reasons ended ...
Avatar universal

How can I keep from having blowouts

Coloquestions
I am 3 or 4 weeks post surgery with a descending colostomy. I cannot seem to keep the wafers, or barriers as some call them, attached. ...
Avatar universal

Ostomy Rod fell out

RNHHWCC
I am 4 days post op and my rod was accidentally removed. Anyone experience this? I am being told that not all surgeons use the rod anyway...
Avatar universal

ilostomy reversal

northengirl644
Hi there all, i have had my whole large intestine removed and have had bag for past year while having treatment my question is , has any...
2 answers   
Avatar universal

blood from stoma

sam121147
I HAVE BEEN HAVING APROBLEM WITH BLOOD FROM MY STOMA IT HAS HAPPENED 3 TIMES NOW ABOUT ONCE A MONTH, AND ITS QUITE A BIT WITH CLOTS EVEN,...
3 answers | 2 comments   
Avatar universal

What is the best remedy to clear up redness on skin around the stoma?

Lillysnana
I am a month in with my stoma and a couple weeks ago I began getting a rash due to leaking around my stoma. I do have sensitive skin. It...
Avatar universal

Does any one know what white canker like sores on the stoma can be?

Ostimatemom
There are white canker like sores on the stoma, does any one know what these could be? They also bleed, we are wondering if the Crohn's i...
Avatar universal

Post ileostomy loop closure complications - acid reflux

SamanthaClareDunn
Hi everyone. My Gran just had an op to close her ileostomy loop but is now suffering from acid reflux. Is this common? What will help the...
Avatar universal

Why do I gain weight with a J pouch, if I eat more than 1400 calories per day?

BZanca
I had the surgery 23 years ago and it doesn't seem like the food is in me long enough to absorb the calories, but here I am, in my late 5...
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